https://socictopen.socict.org/files/original/e7af4d5b7b1517194e96e99b2c48329d.pdf da69477f94558b94fd5791c00ab6ec6c Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Coronavirus Description An account of the resource Dominio científico: Coronavirus Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Why the public need a say in how patient data are Used for Covid-19 Responses Creator An entity primarily responsible for making the resource Mhairi Aitken, Sarah Cunningham-Burley, Amy Darlington, Stephen Elstub, Oliver Escobar, Kerina Jones, Nayha Sethi, Rachel Thompson Description An account of the resource The global coronavirus pandemic has clearly demonstrated the great urgency to collect and use patient data effectively to understand, track and manage the spread of Covid-19. The value of patient data in this pandemic is undeniable, however considerations around how - and by whom - such data should be collected, accessed and used, and for what purposes, remain to be fully debated and resolved. Who decides, and how such decisions are made remain unclear. We argue that public engagement and deliberation are essential for good governance and are key to establish and maintain a legitimate social licence for data practices around Covid-19. Date A point or period of time associated with an event in the lifecycle of the resource 2020 Subject The topic of the resource covid-19, public engagement, Patient Data, social licence Identifier An unambiguous reference to the resource within a given context 10.23889/ijpds.v5i2.1357 Source A related resource from which the described resource is derived Epidemiology and Health Publisher An entity responsible for making the resource available Korean Society of Epidemiology Coverage The spatial or temporal topic of the resource, the spatial applicability of the resource, or the jurisdiction under which the resource is relevant Demography. Population. Vital events